Tuesday, January 26, 2010

John is 19 1/2 months old

Just an update on John's progress - The physical therapist was here on Jan 6th and said that she doesn’t really see a need for John to continue with PT. We are going to keep meeting once a month just to make sure he stays caught up, but she thinks right now he is there. And today he was climbing up his changing table over and over again, so now I think it is time to get that out of the room. His occupational therapist is going to come twice a month to the house still to work with him as he is still behind in that area a little bit. His speech has been making great improvements in the last few weeks. He understands a lot more of what I am saying to him, he points at things that he wants and he makes lots of babbling noises.Also, the genetic counselor called on 1-6-10 and gave good reports on the most recent levels we had taken on John. His GA level was 3.8 (before diagnosis it was a 29), his ornithine was a little high at 199 (200 is the high end of normal) so they are going to watch it a little bit, his arginine level is 42 (12-133 is normal) so she said that is great because they want to keep him on the low end of normal, his prealbumin level is 17.1 (18 is the low end of normal) so they are going to keep watching it, but for right now they are not worried because she said that there is a group called branch chain amino acids that you can only get from your diet and all of those levels looked great. They are also going to schedule an eye exam with a pediatric doctor – but I can’t remember exactly why, something about it just being a precaution and right now they don't see anything wrong at all with his eyes.

Here are some recent pictures of John. http://www.facebook.com/photo.php?pid=3083854&id=104740549193

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