Saturday, May 8, 2010

May 2010

John is starting to use a few signs to communicate with us. He is able to sign "hungry" by rubbing his tummy and "thirsty" by pointing to his mouth. He also has learned how to shake his head "no" and of course he finds this so funny that he laughs while doing it. He really is making great progress physically. He is doing better walking up and down stairs, but still needs our hands to hold and some help.

My only concern recently has been his diet. The last two times we have had his blood drawn his protein level has been below the normal range. This has me a little worried. Especially after talking to another mother Kim that has two children with GAMT, it seems like we are maybe being way to strick with his diet. I've increased his protein intake some in the last few days and we go back on May 24th to have his levels re-checked, so hopefully we will get some more answers then. It would be so awesome if John could start to eat more normal foods and it would make life a lot easier for him and me. His diet mostly consisted of fruits and vegetables and this week I've started to add more real dairy products to it, such as yogurt and cheese.

John's 2nd birthday is at the end of this month and I can't believe that almost 2 years have gone by. When I think back to his 1st birthday party, he was still struggling to sit up by himself. He had a little bit of fun opening presents and playing with his cake, but it is hard to think about sometimes because even though he was having some fun, you could still see him struggling inside and at that moment in time John was going backwards and it was feeling like we were losing him. I can't wait to celebrate his birthday this year because we have so much to be thankful!! He has made such progress in the past year and is so happy and healthy! It is going to be so nice to just watch him playing with the other children. What a difference a year has made!! John has taught me a lot and I am so proud to be his mommy!

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